Trials from Transfusions
February 27, 2010 - 11:09 am
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Meta
February 27th, 2010 at 11:44 am
Keep on pumping ! It is worth it, even if it is hard.
With propoer iron chelation you can live a normal life without complications.
February 27th, 2010 at 12:29 pm
The U.S. Food and Drug Administration (FDA) approves of Exjade (deferasirox), an oral iron chelator developed to treat chronic iron overload due to multiple blood transfusions.
February 27th, 2010 at 12:29 pm
Thank you for posting this video. Ida & Teresa, you were in my thoughts when I posted a note about Thalassemia on my Facebook. Ièm working on doing fund raising for it very soon. My name is Chadwyck and I am an alpha thalassemic minor. This video has been inspiring for me.
February 27th, 2010 at 1:06 pm
What type of thalassemia do you have? I’m still in the dark with my severity level. I don’t require transfusions but I have alpha thal. and every time I go to the emergency, I have to explain my history. It’s weird that other people know so much about this blood disease and in my area nobody knows what it is, only me.
February 27th, 2010 at 1:40 pm
its good that you have done this video– i hope lots of people watch it and make use of it– i had a lovely little 10 yr old daughter who had thalassemia major but she died after a bone marrow transplant which was supposed to have saved her from blood transfusions!!!!. father of “kiran ashfaq” remembered for ever!!